Pink and Pearls: Other breast cancer blogs

Lisa Bonchek Adams, Writings on metastatic breast cancer, grief & loss, life, and family (deceased)

I Don't Know Anything About Breast Cancer

Stupid Dumb Breast Cancer

This Time Around

regrounding: of chemo, cancer and facing life head-on

Journeying Beyond Breast Cancer

The Silver Pen

Fights Like a Girl

Booby and the Beast

The Real

Pink WAS my Color

26 & Kicking Breast Cancer's Ass

What is LFS?

According to the NIH, Li-Fraumeni syndrome is a rare disorder that greatly increases the risk of developing several types of cancer, particularly in children and young adults.
The cancers most often associated with Li-Fraumeni syndrome include breast cancer, a form of bone cancer called osteosarcoma, and cancers of soft tissues (such as muscle) called soft tissue sarcomas. Other cancers commonly seen in this syndrome include brain tumors, cancers of blood-forming tissues (leukemias), and a cancer called adrenocortical carcinoma that affects the outer layer of the adrenal glands (small hormone-producing glands on top of each kidney). Several other types of cancer also occur more frequently in people with Li-Fraumeni syndrome.
The exact prevalence of Li-Fraumeni is unknown. One U.S. registry of Li-Fraumeni syndrome patients suggests that about 400 people from 64 families have this disorder.
Information provided by the National Institutes of Health, http://ghr.nlm.nih.gov/condition/li-fraumeni-syndrome

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